New Surgery Dates 🙌🏼

This is how I feel right now, rising through the fire and ice.

---

Well it's about effing time, right? I started the process to get my spinal cord stimulators wayyyyyy back in November, which included worker's comp authorizations, psych eval, qualified medical examination, trial implant, surgical implant of one.... And then derailed by bacterial meningitis, removal of the implant, neutropenic fever, and infectious disease protocols. Phew! But here I am... With new surgery dates!!!

June 30th and July 21st (my anniversary ❤️) are both tentatively scheduled. There are still some hoops to jump through with regards to new authorizations and pre-op appointments, but nothing anyone seems to be worried about.

For me, this couldn't be coming soon enough. In fact, I am still pushing to have them both done on the 30th. At this point, it doesn't look like that will happen, but I will keep asking.

My dystonia or spasticity it ridiculously out of control. My discoloration is all over the place. I keep losing feeling in my arms and legs, only to be knocked out with horrific pain. I have been napping almost everyday because my body just can't take it anymore. When I used to go lay down to watch TV, I find myself just laying in silence trying to calm my nerves down. And don't even get me started on these headaches.

L foot discoloration and nail changes. R foot dystonia.

---

I keep hearing ladies complain that they need pedicures and can't get them because of quarantine. I just keep thinking... at least your feet look like feet.

Please send prayers and positive vibes. Let's hope by September I can be walking around, carrying my baby, and taking a shower without crying from pain. I have so much hope and trust in God and these surgeries. I am staying as positive as possible and grateful that these surgeries won't interfere with our sports schedule or work schedule since it's a quarantine summer in this house!

#crps #crpsawareness #rsd #scs #spinalcordstimulator #nevro #hf10 #robomom #quarantine #blm #surgery #colorchanges #nailchanges #dystonia #spasticity #ineffablepain